Chronic Illness, Coping, Life Posts

The Trifecta

Early this morning I meet with a new neurologist, one that I have been wanting to see for a while. When he accepted my case and I booked my appoinment I felt like I was going to finally get somewhere. This is because he sees and treats comlpex disorders/cases. He would be able to work… Continue reading The Trifecta

Chronic Illness, Coping, Life Posts, Mental Health

Find Me in the Ashes

I am forever grateful that I now have a central line. But my stomach still drops when hearing the words 'blood draw'. And while I look calm and collected, I am fending off a full scale panic attack as the nurses try again and again to get an IV started. Now, I have been poked… Continue reading Find Me in the Ashes

LGBT, Life Posts, Mental Health

Love, Me

So, because it is National Coming Out Day I decided to finally watch the movie Love, Simon. I'll be honest with you, I had to pause the movie 3/4 of the way through. From the scene where Simon was outed on, I could not stop crying. I was sobbing. Now I know that Simon was… Continue reading Love, Me

Chronic Illness, Coping, Mental Health

The Major Losses Of Living With Chronic Illness

Living with chronic illness suck butts. There I said it. It's hard, hurts, and is generally hell. In this post I will describe some losses and thing spoonies will tend to grieve as a way for friends and family to get some insight into what we have to experience in our journey. And for us… Continue reading The Major Losses Of Living With Chronic Illness

Chronic Illness, Life Posts

Planning A Hospital Stay…For Once

As the date of my surgery closes in, it is important that I finalize my plans for my hospital stay and recovery. Things like checking to make sure the hospital's pharmacy carries all the medications and supplements I take, or checking if I need to bring my own supplements. Ensuring I have actual shampoo for… Continue reading Planning A Hospital Stay…For Once

Chronic Illness, Life Posts

The Countdown Begins

It is now exactly  a month until I will be going under the knife for the first time. Thirty days from now, on April 9th, I will be waking up with some new hardware in my body. I will have a titanium bar in my chest as a means of correcting my pectus excavatum, a… Continue reading The Countdown Begins