Chronic Illness, Coping, Life Posts, Mental Health

Losing Mobility

I won't deny this isolation has been hard. Not being able to see my therapist or my psychiatric NP in person for our first meetings has already set me back in the diagnosis and treatment process. They can't see my mannerisms and stims, they can't read my facial expressions or tone, they can't tell when… Continue reading Losing Mobility

Chronic Illness, Life Posts

Percy the PICC Line

So, today I got my 8th? PICC line placed (peripherally inserted central catheter). They had to make a second incision because it wouldn't thread in the first spot. Basically they told me my veins narrow in certain places they shouldn't and that overall they are tiny baby veins. My luck. They tried threading the guide… Continue reading Percy the PICC Line

Chronic Illness, Coping, Uncategorized

Don’t Throw Us Away

I may now be an adult and legally responsible for myself, but that in no way means that I am ready to be dumped like yesterday's garbage on the curb and forced to face the world alone. Luckily, I have a great support system, that won't happen. But for some disabled teenagers facing their eighteenth… Continue reading Don’t Throw Us Away