Disappointed but not surprised is definitely the mood for 2020. With everything that has happened and is currently happening, this year is shaping up to be one big face. Being separated from friends is my norm. Due to the complexity of chronic illness and symptom flares I often have to cancel physical plans and… Continue reading Disappointed But Not Surprised
Because I've seen a lot of it lately in my news feed and am getting fed up with all the comments under each video, I am going on a little rant about "Inspo-Porn". Inspiration porn is when disabled people are portrayed as 'inspirational' or 'extraordinary' due solely to the fact that they live life with… Continue reading Being disabled isn’t ‘Brave’, its my reality.
Today is Rare Disease Day. There are over 6,000 diseases and disorders that are considered rare. Meaning in Europe, it affects fewer than 1 in 2,000 people, and in the United States, fewer than 200,000 people are affected. While these diseases and disorders are rare, being affected by one isn't. In fact 1 in 20… Continue reading Rare Disease Day 2019
I am forever grateful that I now have a central line. But my stomach still drops when hearing the words 'blood draw'. And while I look calm and collected, I am fending off a full scale panic attack as the nurses try again and again to get an IV started. Now, I have been poked… Continue reading Find Me in the Ashes
So, because it is National Coming Out Day I decided to finally watch the movie Love, Simon. I'll be honest with you, I had to pause the movie 3/4 of the way through. From the scene where Simon was outed on, I could not stop crying. I was sobbing. Now I know that Simon was… Continue reading Love, Me
Living with chronic illness suck butts. There I said it. It's hard, hurts, and is generally hell. In this post I will describe some losses and thing spoonies will tend to grieve as a way for friends and family to get some insight into what we have to experience in our journey. And for us… Continue reading The Major Losses Of Living With Chronic Illness
Because we met online in NO way invalidates our friendship. Please, spare me the speech on how there are "middle aged men posing as teenagers" out there trying to exploit young girls. I'm a big girl now, I can judge and rationalize and determine the difference between a spam account and a farm girl from… Continue reading A Necessity In A Life With Chronic Illness
I may now be an adult and legally responsible for myself, but that in no way means that I am ready to be dumped like yesterday's garbage on the curb and forced to face the world alone. Luckily, I have a great support system, that won't happen. But for some disabled teenagers facing their eighteenth… Continue reading Don’t Throw Us Away