Chronic Illness, LGBT, Mental Health

I’m Done Explaining

I'm so tired of justifying my right to exist. I'm so tired of defending my identity, my actions, my boundaries. But if I stopped advocating for myself and my communities, who would? It's utterly exhausting trying to explain why I deserve respect and human decency. And it hurts so much when people fail to see… Continue reading I’m Done Explaining

Chronic Illness

Rare Disease Day 2019

Today is Rare Disease Day. There are over 6,000 diseases and disorders that are considered rare. Meaning in Europe, it affects fewer than 1 in 2,000 people, and in the United States, fewer than 200,000 people are affected. While these diseases and disorders are rare, being affected by one isn't. In fact 1 in 20… Continue reading Rare Disease Day 2019

Chronic Illness, Coping, Life Posts, Mental Health

Find Me in the Ashes

I am forever grateful that I now have a central line. But my stomach still drops when hearing the words 'blood draw'. And while I look calm and collected, I am fending off a full scale panic attack as the nurses try again and again to get an IV started. Now, I have been poked… Continue reading Find Me in the Ashes