Look for the light and you will often find it, look for the dark and it is all you will ever see
Today is Rare Disease Day. There are over 6,000 diseases and disorders that are considered rare. Meaning in Europe, it affects fewer than 1 in 2,000 people, and in the United States, fewer than 200,000 people are affected. While these diseases and disorders are rare, being affected by one isn't. In fact 1 in 20… Continue reading Rare Disease Day 2019
I am forever grateful that I now have a central line. But my stomach still drops when hearing the words 'blood draw'. And while I look calm and collected, I am fending off a full scale panic attack as the nurses try again and again to get an IV started. Now, I have been poked… Continue reading Find Me in the Ashes
I feel like a chicken with it's head cut off! I have been in and out of the hospital, the emergency room, and urgent care these past few months and it all comes back to the fact that I'm not eating. I eat, I get cramping. I eat, I get nauseous. I eat, I throw… Continue reading Running Around in Circles
Living with chronic illness suck butts. There I said it. It's hard, hurts, and is generally hell. In this post I will describe some losses and thing spoonies will tend to grieve as a way for friends and family to get some insight into what we have to experience in our journey. And for us… Continue reading The Major Losses Of Living With Chronic Illness
Because we met online in NO way invalidates our friendship. Please, spare me the speech on how there are "middle aged men posing as teenagers" out there trying to exploit young girls. I'm a big girl now, I can judge and rationalize and determine the difference between a spam account and a farm girl from… Continue reading A Necessity In A Life With Chronic Illness
I am trying something a bit different. I hope you all like it or get something from it or that it makes you feel something. I am in no way even a amateur, I am like below that. But I am trying to better my poetry, and putting it out there is one way to… Continue reading Sympathy the Shame Slayer
