I'm so tired of justifying my right to exist. I'm so tired of defending my identity, my actions, my boundaries. But if I stopped advocating for myself and my communities, who would? It's utterly exhausting trying to explain why I deserve respect and human decency. And it hurts so much when people fail to see… Continue reading I’m Done Explaining
Tag: chronicpain
Think Zebra
I'll admit this winter has been hard on me. From the beginning of the new year I have been in a huge pain flare and depressive episode. My motivation was drained. I was constantly exhausted, taking 2 or more naps a day. For a brief moment I lost hope. Hope that I would graduate. Hope… Continue reading Think Zebra
The Trifecta
Early this morning I meet with a new neurologist, one that I have been wanting to see for a while. When he accepted my case and I booked my appoinment I felt like I was going to finally get somewhere. This is because he sees and treats comlpex disorders/cases. He would be able to work… Continue reading The Trifecta
The Major Losses Of Living With Chronic Illness
Living with chronic illness suck butts. There I said it. It's hard, hurts, and is generally hell. In this post I will describe some losses and thing spoonies will tend to grieve as a way for friends and family to get some insight into what we have to experience in our journey. And for us… Continue reading The Major Losses Of Living With Chronic Illness
A Little Work, A Little Pain
I got outside and did something today!! I helped cut down branches of some eucalyptus (a put in a pic for you guys in case you have never seen one, p.s. koalas eat it!) offshoots. I stood and using pruning shears, and cut the little branches into smaller pieces so that they would fit in… Continue reading A Little Work, A Little Pain
