I won't deny this isolation has been hard. Not being able to see my therapist or my psychiatric NP in person for our first meetings has already set me back in the diagnosis and treatment process. They can't see my mannerisms and stims, they can't read my facial expressions or tone, they can't tell when… Continue reading Losing Mobility
Tag: chronicillness
Disappointed But Not Surprised
Disappointed but not surprised is definitely the mood for 2020. With everything that has happened and is currently happening, this year is shaping up to be one big 
face. Being separated from friends is my norm. Due to the complexity of chronic illness and symptom flares I often have to cancel physical plans and… Continue reading Disappointed But Not Surprised
I’m Done Explaining
I'm so tired of justifying my right to exist. I'm so tired of defending my identity, my actions, my boundaries. But if I stopped advocating for myself and my communities, who would? It's utterly exhausting trying to explain why I deserve respect and human decency. And it hurts so much when people fail to see… Continue reading I’m Done Explaining
Think Zebra
I'll admit this winter has been hard on me. From the beginning of the new year I have been in a huge pain flare and depressive episode. My motivation was drained. I was constantly exhausted, taking 2 or more naps a day. For a brief moment I lost hope. Hope that I would graduate. Hope… Continue reading Think Zebra
The Trifecta
Early this morning I meet with a new neurologist, one that I have been wanting to see for a while. When he accepted my case and I booked my appoinment I felt like I was going to finally get somewhere. This is because he sees and treats comlpex disorders/cases. He would be able to work… Continue reading The Trifecta
The Major Losses Of Living With Chronic Illness
Living with chronic illness suck butts. There I said it. It's hard, hurts, and is generally hell. In this post I will describe some losses and thing spoonies will tend to grieve as a way for friends and family to get some insight into what we have to experience in our journey. And for us… Continue reading The Major Losses Of Living With Chronic Illness
A Necessity In A Life With Chronic Illness
Because we met online in NO way invalidates our friendship. Please, spare me the speech on how there are "middle aged men posing as teenagers" out there trying to exploit young girls. I'm a big girl now, I can judge and rationalize and determine the difference between a spam account and a farm girl from… Continue reading A Necessity In A Life With Chronic Illness
Rough Go Of It
I send my sincerest apologies as for the past month I have been extremely unwell. The first week of October was my first week of fall break from school. I was just generally run down and feeling drained. A migraine was bound to happen from my interrupted sleep schedule and it came and went at… Continue reading Rough Go Of It
I Am Here, I Am Hurting
Ya'll get a second post this week because I need to vent about my frustrations in finding a chronic illness or chronic pain support group. It seems that if you have a chronic or invisible illness you are invisible to the world. I have found less than a handful of support groups in my area… Continue reading I Am Here, I Am Hurting
