Chronic Illness, Coping, Uncategorized

Don’t Throw Us Away

I may now be an adult and legally responsible for myself, but that in no way means that I am ready to be dumped like yesterday's garbage on the curb and forced to face the world alone. Luckily, I have a great support system, that won't happen. But for some disabled teenagers facing their eighteenth… Continue reading Don’t Throw Us Away

Chronic Illness, Life Posts

Planning A Hospital Stay…For Once

As the date of my surgery closes in, it is important that I finalize my plans for my hospital stay and recovery. Things like checking to make sure the hospital's pharmacy carries all the medications and supplements I take, or checking if I need to bring my own supplements. Ensuring I have actual shampoo for… Continue reading Planning A Hospital Stay…For Once

Chronic Illness, Life Posts

The Countdown Begins

It is now exactly  a month until I will be going under the knife for the first time. Thirty days from now, on April 9th, I will be waking up with some new hardware in my body. I will have a titanium bar in my chest as a means of correcting my pectus excavatum, a… Continue reading The Countdown Begins

Chronic Illness, Life Posts

The Body of My Soul

TW: weight loss, body image talk Today I stepped on the scale and began to cry as I watched the numbers settle, barely reaching 100. I looked up into the mirror. Avoiding eye contact with my tear streaked face, I scanned every inch of freckled porcelain set against the coffee colored backdrop of the bathroom… Continue reading The Body of My Soul

Chronic Illness, Life Posts

In a Not So Neat Little Bow

  Well the year is coming to a close and it feels like my life is a complete disaster zone. The week before Christmas and part of finals week I was sick with a nasty cold. No big deal right, take and Advil cold and sinus and get on with it...not. That hardly touched it… Continue reading In a Not So Neat Little Bow