I'm so tired of justifying my right to exist. I'm so tired of defending my identity, my actions, my boundaries. But if I stopped advocating for myself and my communities, who would? It's utterly exhausting trying to explain why I deserve respect and human decency. And it hurts so much when people fail to see… Continue reading I’m Done Explaining
Recently, I was diagnosed with lymphedema in my legs and since my last pain flare its been running rampant. Right now, I am going to vent about why I hate it and now hate yet another part of my body. In my case, lymphedema cause my lymphatic system to be unable to properly filter lymph… Continue reading Lymphedema Can Suck It!
I'll admit this winter has been hard on me. From the beginning of the new year I have been in a huge pain flare and depressive episode. My motivation was drained. I was constantly exhausted, taking 2 or more naps a day. For a brief moment I lost hope. Hope that I would graduate. Hope… Continue reading Think Zebra
Lets just scratch out January and pretend February is the first month of the year, OK? This year I am trying out a word of the year. My word is PEACE. Peace of mind. Peace of body. Peace of heart. I am using The Mighty's 52 Small Things plan of achieving one small goal or… Continue reading Peace and The New Year
I am forever grateful that I now have a central line. But my stomach still drops when hearing the words 'blood draw'. And while I look calm and collected, I am fending off a full scale panic attack as the nurses try again and again to get an IV started. Now, I have been poked… Continue reading Find Me in the Ashes
So, because it is National Coming Out Day I decided to finally watch the movie Love, Simon. I'll be honest with you, I had to pause the movie 3/4 of the way through. From the scene where Simon was outed on, I could not stop crying. I was sobbing. Now I know that Simon was… Continue reading Love, Me
Living with chronic illness suck butts. There I said it. It's hard, hurts, and is generally hell. In this post I will describe some losses and thing spoonies will tend to grieve as a way for friends and family to get some insight into what we have to experience in our journey. And for us… Continue reading The Major Losses Of Living With Chronic Illness