Chronic Illness, Coping, Life Posts

The Trifecta

Early this morning I meet with a new neurologist, one that I have been wanting to see for a while. When he accepted my case and I booked my appoinment I felt like I was going to finally get somewhere. This is because he sees and treats comlpex disorders/cases. He would be able to work… Continue reading The Trifecta

Chronic Illness, Coping, Life Posts, Mental Health

Find Me in the Ashes

I am forever grateful that I now have a central line. But my stomach still drops when hearing the words 'blood draw'. And while I look calm and collected, I am fending off a full scale panic attack as the nurses try again and again to get an IV started. Now, I have been poked… Continue reading Find Me in the Ashes

Chronic Illness, Coping, Mental Health

The Major Losses Of Living With Chronic Illness

Living with chronic illness suck butts. There I said it. It's hard, hurts, and is generally hell. In this post I will describe some losses and thing spoonies will tend to grieve as a way for friends and family to get some insight into what we have to experience in our journey. And for us… Continue reading The Major Losses Of Living With Chronic Illness

Chronic Illness, Coping

A Necessity In A Life With Chronic Illness

Because we met online in NO way invalidates our friendship. Please, spare me the speech on how there are "middle aged men posing as teenagers" out there trying to exploit young girls. I'm a big girl now, I can judge and rationalize and determine the difference between a spam account and a farm girl from… Continue reading A Necessity In A Life With Chronic Illness

Chronic Illness, Coping, Uncategorized

Don’t Throw Us Away

I may now be an adult and legally responsible for myself, but that in no way means that I am ready to be dumped like yesterday's garbage on the curb and forced to face the world alone. Luckily, I have a great support system, that won't happen. But for some disabled teenagers facing their eighteenth… Continue reading Don’t Throw Us Away