I won't deny this isolation has been hard. Not being able to see my therapist or my psychiatric NP in person for our first meetings has already set me back in the diagnosis and treatment process. They can't see my mannerisms and stims, they can't read my facial expressions or tone, they can't tell when… Continue reading Losing Mobility
Category: Coping
Starving for Answers
Nine days. That doesn't seem like a very long time, just over a week. But nine days can feel like a month when each day you get out of bed only to wither away a bit more. I see a new gastroenterologist in nine days. Hopefully he will be able to provide some answers or… Continue reading Starving for Answers
The Trifecta
Early this morning I meet with a new neurologist, one that I have been wanting to see for a while. When he accepted my case and I booked my appoinment I felt like I was going to finally get somewhere. This is because he sees and treats comlpex disorders/cases. He would be able to work… Continue reading The Trifecta
Find Me in the Ashes
I am forever grateful that I now have a central line. But my stomach still drops when hearing the words 'blood draw'. And while I look calm and collected, I am fending off a full scale panic attack as the nurses try again and again to get an IV started. Now, I have been poked… Continue reading Find Me in the Ashes
The Major Losses Of Living With Chronic Illness
Living with chronic illness suck butts. There I said it. It's hard, hurts, and is generally hell. In this post I will describe some losses and thing spoonies will tend to grieve as a way for friends and family to get some insight into what we have to experience in our journey. And for us… Continue reading The Major Losses Of Living With Chronic Illness
A Necessity In A Life With Chronic Illness
Because we met online in NO way invalidates our friendship. Please, spare me the speech on how there are "middle aged men posing as teenagers" out there trying to exploit young girls. I'm a big girl now, I can judge and rationalize and determine the difference between a spam account and a farm girl from… Continue reading A Necessity In A Life With Chronic Illness
Sympathy the Shame Slayer
I am trying something a bit different. I hope you all like it or get something from it or that it makes you feel something. I am in no way even a amateur, I am like below that. But I am trying to better my poetry, and putting it out there is one way to… Continue reading Sympathy the Shame Slayer
Don’t Throw Us Away
I may now be an adult and legally responsible for myself, but that in no way means that I am ready to be dumped like yesterday's garbage on the curb and forced to face the world alone. Luckily, I have a great support system, that won't happen. But for some disabled teenagers facing their eighteenth… Continue reading Don’t Throw Us Away
Conflicted
Well the MRI came back clear. And I really don't know how I feel about it. I really wanted answers...but I didn't want another diagnosis. I wanted to finally see what was causing my life to be an uphill battle but the truth was, there was no cause but life itself. We didn't get the… Continue reading Conflicted
Nervous but Excited
School started this past Monday and the week leading up to it was a bit chaotic. My week went a bit like this: School shopping for adorable supplies (this takes forever since I'm very anal about organizational supplies), take a few hour break. Find clothes that are dress code appropriate since I haven't had one… Continue reading Nervous but Excited
