Whelp, it is indeed 4AM here in Arizona as I sit here typing this out. I didn’t sleep hardly at all, maybe two hours at the most. I had a horrid migraine yesterday and slept most of the morning away. That afternoon though I sorted out some of the insurance kinks with my getting in to see a surgeon.
I’m sorry I haven’t updated you guys about this it was just kinda a lot to take in. OK. On November 7th I had a Metabolic Stress Test performed, these results showed that I am deconditioned (duh). They also showed that I have PVC’s, premature ventricular contractions, (extra heartbeats) that are continuous throughout the exercise period (they also are consistent with my daily living and are showing up on the 30-day Holter monitor I’m currently wearing). Most importantly this stress test showed my symptoms, the fainting, shortness of breath, palpitations, chest pains, racing heart, etc. aren’t all caused by my deconditioned state. Something else is wrong. Right now we are blaming my Pectus Excavatum; the way that my ribs dip inward to create a short of pocket when they meet at my sternum. Now mine’s nowhere near severe as the ones I’ve seen (mostly in Marfan Syndrome peeps), but I’m a lady and well, boobs. They kinda obscure the severity. This is why I’m making an appointment with the surgeon.
I am calling to schedule an appointment with a surgeon at PCH so that we can discuss what will be the best type of testing and scans to proceed with to decide if I am a good candidate for the Nuss Procedure. We wouldn’t want to do anything unnecessary like say two CT scans mere weeks apart since we didn’t get the right depth the first time. I trust my cardiologist for referring me to the surgery clinic and would much rather keep it in the Hospital than have to go to Banner and possibly need to see Their surgeon, plus Their cardiologist for referral to the surgeon, plus Their primary care for pre-op clearance etc. It’s much better and less stressful to keep it in the PCH family since their records are as easy to pull up as Facebook if your in network.
Onto the Nuss procedure. In laments terms they’d be sliding a bar into my chest through two incisions on the side of my chest, this bar would pull my ribcage out and hold it there for a specific amount of time determined by my surgeon. After that amount of time, the bar would then be removed through one of the same side incisions. My chest would be a normal bell shape and all would be good, my symptoms relived or greatly diminished (since I still have low blood pressure when changing positions and exercising, the procedure would not alleviate the symptoms related to that). It is minimally invasive, I would need an epidural catheter and believe me those look very intimidating. It would be a 7 day hospital stay max if my pain wasn’t easy to control ( I pray that it will be, but my body is a sucker for pain and pain meds don’t always do it for me) And I would be sent home with exercises to do and told to keep my posture near perfect. I’m actually hoping that this procedure would help my posture, I’m thinking it might be causing me to slump and roll my shoulders forward because my chest isn’t out straight and flat. Who knows, there are many potentially benefits to this procedure, we just have to find out if it’s a right fit for me.