Chronic Illness · Life Posts

Going Somewhere (Maybe)

My cardiologist appointment on Tuesday actually made some progress for once. And I was actually going to bail after this visit and get a new referral from my primary next week. But we got stuff done. First we went over the Holter monitor results. Other than a few sporadic extra beats very rarely correlating with symptoms, everything looked pretty ok. A few extra beat randomly spread out, I’m told, aren’t enough to bring on symptoms. There have to be multiple in a row to bring about physical signs and to cause concern. Next, we added a new medication that is going to help me retain salt and thus water. Hopefully, with it’s addition my blood pressures will stabilize and get out of the 90’s, up to where they should be. He also ordered (at my discretion) multiple lab panels looking into things such as Celiac disease, Lupus, and Juvenile Rheumatoid Arthritis. He doesn’t entirely suspect those things but my symptoms are similar and having a geneticist appointment in a few months,  he asked me point blank whether or not I wanted to wait till then. If you have been following along you know that right now I’m grasping for straws. So we figured the information would be useful to the geneticist so that they could focus on ordering more specific panels and so that we could focus on narrowing down a cause for some of my cardiovascular symptoms. So a few pokes and six vials of blood later here we are waiting again, albeit resting a bit easier than those stressful MRI results. While I trust in my doctor’s call that I more than likely don’t have any of the aforementioned conditions, he told me himself that he simply doesn’t know 100% unless he checks. My body has been known to throw curve balls and I don’t want to get blindsided by one.

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