So I have been trying to get into a geneticist at my local hospital per my neurologist’s recommendation, to test for Ehlers Danlos Syndrome. Good news, I might finally get answers. Bad news, they are booking out till December. I have soo many questions and have had them racing around in my head accumulating for over a year, waiting for someone to pull the leaver and have them all come spilling out. Frustrations with my cardiologist who I feel is not a right fit for me, and trying to find a adult primary that takes both my insurances are just more reasons I feel like I can’t reach the surface and am running out of air. It’s almost comical how a chronically ill person’s life can go from ‘top of the world’ to ‘handle with care’. A few weeks ago I was camping, in less pain, and actually enjoying being out and about. If you read my last blog you’ll understand how awesome I felt. Then I came back to the Valley and it was like I got caught in a landslide. Work dilemmas, insurance crap, appointment challenges, my health declining because of this god damned retched heat. It was a shock to come back and suddenly feel disabled again, I still can’t believe how much of a difference a change of scenery made. I’m just glad I can talk to my neurologist soon and discuss some ideas I’ve been itching to get out. I just hope I can get some answers soon before my head explodes. See y’all soon ❤
Help, I’m Drowning
Published by thechronictypist
Being a queer, trans, autistic person who is both physically & mentally disabled, I have a unique perspective on the world.By letting that come through in my writing,I am creating the representation I so desperately needed growing up. I'm a realistically optimistic person. Its an outlook on life that has helped me deal with my rollarcoaster of a life. As a wise old man once said "Look for the light and you will often find it, look for the dark and it is all you will ever see." I strive to better myself through gaining insight and knowledge. I'm open to constructive criticism via email or private message.So feel free to express your thoughts! View all posts by thechronictypist