So I have been trying to get into a geneticist at my local hospital per my neurologist’s recommendation, to test for Ehlers Danlos Syndrome. Good news, I might finally get answers. Bad news, they are booking out till December. I have soo many questions and have had them racing around in my head accumulating for over a year, waiting for someone to pull the leaver and have them all come spilling out. Frustrations with my cardiologist who I feel is not a right fit for me, and trying to find a adult primary that takes both my insurances are just more reasons I feel like I can’t reach the surface and am running out of air. It’s almost comical how a chronically ill person’s life can go from ‘top of the world’ to ‘handle with care’. A few weeks ago I was camping, in less pain, and actually enjoying being out and about. If you read my last blog you’ll understand how awesome I felt. Then I came back to the Valley and it was like I got caught in a landslide. Work dilemmas, insurance crap, appointment challenges, my health declining because of this god damned retched heat. It was a shock to come back and suddenly feel disabled again, I still can’t believe how much of a difference a change of scenery made. I’m just glad I can talk to my neurologist soon and discuss some ideas I’ve been itching to get out. I just hope I can get some answers soon before my head explodes. See y’all soon ❤
Help, I’m Drowning
Published by thechronictypist
As I am disabled and chronically ill, I have a unique perspective on the world and I try to let that come through in my writing. I am optomistically realistic, a outlook that has helped me deal both emotionally and mentally with my rollarcoaster of a life. As a wise old man once said "Look for the light and you will often find it, look for the dark and it is all you will ever see.". In terms of the future I hope to earn a degree in Psychology with a minor in Communications. I know that it will be a long and difficult journey, but ultimatly I beleive it will be worthwhile. Striving always to better myself and gain more insight and knowledge, I am open to constructive criticisim via email or private message. View all posts by thechronictypist