Well my cardiologist appointment went decently, I got some answers but they were mostly what I have been told before so it’s not anything enlightening. Basically I was told that, and I quote my doctor, I ‘almost have Postural Orthostatic Tachycardia Syndrome’ He said I have all the symptoms except for the fact my heart rate only goes up about 20 beats when I go from sitting to standing as fast as I can. People that have POTS have heart rates that usually go up about 40 beats or so. I’m glad I don’t have POTS, but I’m frustrated I still don’t have anything to put my finger on and say ‘that’s why I feel so dizzy and nauseous today’ But I may have to come to the realization that I may never have solid answers. I have been told by many doctors that people like me who have chronic dizziness and fainting, sometimes just have chronic dizziness and fainting because that’s the way their body works. Now that sounds like a loud of it to me but hey, I haven’t studied medicine for umpteen years. So to remedy my symptoms hopefully we are trying a new medication that raises my blood pressure. I’d really rather it not do this but I trust my doctor and it’s the only type of symptom relief that won’t interfere with my other meds. I’m also transitioning from Pediatrics to a regular Cardiologist in the next few months; stressful enough as that is, I’m excited because I will be able to get a second opinion on my condition which always seems to give me a bit of comfort. More updates will come soon as I have a upcoming Neurology appointment this week.
Published by thechronictypist
Being a queer, trans, autistic person who is both physically & mentally disabled, I have a unique perspective on the world.By letting that come through in my writing,I am creating the representation I so desperately needed growing up. I'm a realistically optimistic person. Its an outlook on life that has helped me deal with my rollarcoaster of a life. As a wise old man once said "Look for the light and you will often find it, look for the dark and it is all you will ever see." I strive to better myself through gaining insight and knowledge. I'm open to constructive criticism via email or private message.So feel free to express your thoughts! View all posts by thechronictypist